tag:blogger.com,1999:blog-3409520830606075621.post2638775976265515501..comments2023-06-27T08:23:53.639-07:00Comments on I AM NOT DRUNK: PAINAnonymoushttp://www.blogger.com/profile/12897651512349501048noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-3409520830606075621.post-47464983342812724622014-06-23T16:06:58.346-07:002014-06-23T16:06:58.346-07:00Thanks for your comment Sarah. I understand your a...Thanks for your comment Sarah. I understand your analogy of "parallel universe and am watching myself from the back of my head". Yes, I think Emotional distress does impact, in fact any kind of stress. I hope you remain pain free xAnonymoushttps://www.blogger.com/profile/12897651512349501048noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-7333526682436964992014-06-22T03:05:14.594-07:002014-06-22T03:05:14.594-07:00Hi, I hear you with the pain. Try explaining to pe...Hi, I hear you with the pain. Try explaining to people how you are numb but at the same time dipped in fire. So far the pain meds I've tried don't take the pain away, they just make my head feel further away from the pain, like I've slipped into a parallel universe and am watching myself from the back of my head. I was in US in March and pain came on the moment I landed and burned like a bushfire up me. The moment I came back to the UK 3-weeks later, Bingo! pain gone. In fact, I think the moment I stepped into the BA lounge was the cure! It was a stressful trip and the pain meds had no effect. Had to tough it out for 3 weeks. But I absolutely knew that the minute my feet touched UK ground, it would go away. Emotional distress has definite correlation to onset of my pain 100% of the time. Anonymoushttps://www.blogger.com/profile/11786262242065566453noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-57106933627670518512014-06-17T04:25:21.608-07:002014-06-17T04:25:21.608-07:00Yes, even when I take my pain medication, it only ...Yes, even when I take my pain medication, it only dulls they pain. It makes it manageable, but it is still there. At least it can't affect your sense of humour xAnonymoushttps://www.blogger.com/profile/12897651512349501048noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-3603600331248116172014-06-17T00:45:49.402-07:002014-06-17T00:45:49.402-07:00As you say only those going through it really know...As you say only those going through it really know what its like. I'd like to say it's sent me mad but always been that wayTopsyjkvhttps://www.blogger.com/profile/08644744743634435162noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-19003471480739678362014-06-14T15:09:25.375-07:002014-06-14T15:09:25.375-07:00Thanks Mike. I'm glad. I feel I am on a journe...Thanks Mike. I'm glad. I feel I am on a journey, and am hugely grateful to have such wonderful and supportive people to accompany me xAnonymoushttps://www.blogger.com/profile/12897651512349501048noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-4017056582476611662014-06-14T12:57:05.834-07:002014-06-14T12:57:05.834-07:00You don't preaxh Hanya. You seem to have foun...You don't preaxh Hanya. You seem to have found a way of telling your story and getting across a message which is of interest to all without giving the slightest hint of a lecture. Commuterhttps://www.blogger.com/profile/05790336907713706962noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-72489740014943634062014-06-14T03:06:33.130-07:002014-06-14T03:06:33.130-07:00Thanks for sharing your experience Judith. As you ...Thanks for sharing your experience Judith. As you say it totally disrupts your life. As I say, "There isn't a solution, when you sit there with tears rolling down your cheek." Gabapentin I am delighted to say does offer relief xAnonymoushttps://www.blogger.com/profile/12897651512349501048noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-85809128928142360122014-06-14T02:38:08.529-07:002014-06-14T02:38:08.529-07:00Yes the pain the pain! Gabapentin does bring me so...Yes the pain the pain! Gabapentin does bring me some relief and up until then suffered until couldn't bear no more. It was disrupting my life and my ability to work! Couldn't sleep, couldn't concentrate. On my days off all I was capable of was sleep added to the fatigue I already suffered from. Tried Baclofen but made muscles too weak! I am glad this medication is working for me. Trial and error I'm afraid till you find the correct drug. Seems to be a lot of that happens with this disease! As they say no two are the same.BritGirlhttps://www.blogger.com/profile/03297472018219959136noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-28183311609905998962014-06-13T15:23:04.779-07:002014-06-13T15:23:04.779-07:00I hear you. I hear you loud and clear. I can relat...I hear you. I hear you loud and clear. I can relate. And you can't actually describe it to someone who has never experienced it. Experienced the stabbing pain or the itching or the burning or the, any of the other sensory feelings that make you feel as is you are slowly losing your mind, slowly going crazy.<br /><br />I am so sorry you suffer this dreadful torment. And I can't help. I wish I could help. It is of little comfort, but we know that we are not alone.<br /><br />I have recently been prescribed Gabapentin which has brought an amazing amount of relief. They are used for the treatment of Neurological Pain. It would certainly be worth talking to your GP about them. They provide a tremendous relief to me.<br /><br />Thank You for engaging with the BLOG and sharing your thoughts and experience. xAnonymoushttps://www.blogger.com/profile/12897651512349501048noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-88953844323741960422014-06-13T15:02:16.874-07:002014-06-13T15:02:16.874-07:00I tried to explain this to a friend today. I said ...I tried to explain this to a friend today. I said it was like phantom limb pain where there's no real cause other than damaged nerves. I likened the nerves to an electrical cable where the insulation has come off and the copper wiring has broken in places, so the current is disrupted. Because of this, the pain receptors don't work properly and they perceive pain where none should exist.<br /><br />On Tuesday I couldn't get out of bed because I was in so much pain. The tiniest movement caused stabbing pain in that part of my body. I couldn't touch anything and I couldn't get up to take pain meds, so I slept for most of the day. When I woke in the afternoon the pain was gone, like it had never been. A waste of a day.<br /><br />Last week I had uncontrollable itching for 3 days all over my body - arms, legs, feet, ribs, back - even the palms of my hands. I thought I'd been bitten by midges while putting out the rubbish, but I'd actually given myself welts from scratching so much. I tried witch hazel, calamine lotion and bathing in cool water, but nothing helped. I thought I'd go mad with the itching, then it stopped as suddenly as it started. I tweeted about it and a fellow sufferer told me she experiences this from time to time.<br /><br />For the last 3 nights I've had hot, prickly hands and feet that have kept me awake, but gone in the morning. I can feel my hands heating up as I type this and my toes are prickling.<br /><br />Paraesthesia and dysaesthesia are the bane of my existence. It's inconvenient and annoying and disrupts my life no end. #MSsucks ��Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-20882784657464483702014-06-13T13:19:21.990-07:002014-06-13T13:19:21.990-07:00Thanks Mike. I really do hope these post and infor...Thanks Mike. I really do hope these post and informative, but I'd never want to preach xAnonymoushttps://www.blogger.com/profile/12897651512349501048noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-30818059377522123502014-06-13T13:09:51.492-07:002014-06-13T13:09:51.492-07:00I certainly had no idea Hanya... Another blog p...I certainly had no idea Hanya... Another blog post which is insightful and brilliantly written. MikeCommuterhttps://www.blogger.com/profile/05790336907713706962noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-26479668327667016612014-06-13T11:50:45.898-07:002014-06-13T11:50:45.898-07:00Thanks for your comment. So sorry that you experie...Thanks for your comment. So sorry that you experience pain too - it is another cruel and 'invisible' symptom. xAnonymoushttps://www.blogger.com/profile/12897651512349501048noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-22264541529201849402014-06-13T11:45:37.020-07:002014-06-13T11:45:37.020-07:00I feel pain all the time! It's always there, o...I feel pain all the time! It's always there, only the degree of it varies. <br />Great post Hanya! xAnonymoushttps://www.blogger.com/profile/04976705732236753230noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-58212797120133125192014-06-13T11:43:30.669-07:002014-06-13T11:43:30.669-07:00Stephen, you are right. I think it is only people ...Stephen, you are right. I think it is only people who have experienced it will truly understand how terribly debilitating it is. It does feel as if it will slowly drive you mad.Anonymoushttps://www.blogger.com/profile/12897651512349501048noreply@blogger.comtag:blogger.com,1999:blog-3409520830606075621.post-39501299712912821062014-06-13T11:37:14.257-07:002014-06-13T11:37:14.257-07:00I can empathise with you totally Hanya. Neuropathi...I can empathise with you totally Hanya. Neuropathic pain is unlike any physical pain. It is draining and exhausting and compounded by adding to the stress of living with MS.<br />It can often be difficult to describe, even to yourself.Dipsy Tripsyhttps://www.blogger.com/profile/04581061358048160015noreply@blogger.com